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tight skin contracture syndrome

MIM.275210

hyperkeratosis-contracture syndrome, lethal restrictive dermopathy, fetal hypokinesia sequence due to restrictive dermopathy

Autosomal recessive dermopathy.

Synopsis

- systemic anomalies

  • intrauterine growth retardation
  • decreased fetal activity
  • polyhydramnios
  • premature rupture of membranes
  • premature birth
  • short umbilical cord
  • hydropic placenta
  • stillbirth
  • liveborn often die within first week of life

- craniofacial anomalies

  • large fontanel
  • micrognathia
  • expressionless facies
  • dysplastic ears
  • low-set ears
  • hypertelorism
  • entropion
  • short palpebral fissures
  • sparse/absent eyelashes
  • sparse/absent eyebrows
  • small, pinched nose
  • choanal atresia
  • small mouth
  • submucous cleft palate
  • cleft palate
  • ankylosis of temporomandibular joint
  • natal teeth

- cardiovascular anomalies

- thoracic anomalies

  • pulmonary hypoplasia
  • increased anterioposterior diameter of chest
  • thin, dysplastic bipartite clavicles
  • ribbon-like ribs

- genito-urinary anomalies

- skeletal anomalies

  • poorly mineralized skull
  • widened suture
  • large fontanelles
  • spine
  • kyphoscoliosis
  • limbs
  • joint contractures
  • overtubulated long bones
  • rocker-bottom feet

- cutaneous anomalies

  • skin erosions
  • prominent superficial vasculature
  • skin fissures (groin, axilla, neck)
  • epidermal hyperkeratosis
  • Dermis thinning
  • abnormal alignment of collagen bundles
    - *absence of normal rete ridge pattern
  • short nails
  • long nails
  • sparse/absent eyelashes
  • sparse/absent eyebrows
  • sparse/absent lanugo
  • normal scalp hair

- adrenal hypoplasia

Etiology

- germline mutations in the ZMPSTE24 gene (FACE1) at 1p34 (MIM.606480) (15317753)